When Lauren's heart formed, the left coronary artery, which feeds blood to the left side of her heart, attached to the pulmonary artery instead of the aorta. The picture below shows a typical ALCAPA, but, of course, Lauren's artery placement was not typical and it also had an extra branch coming off.
from www.health32.com |
Here is an illustration of Lauren's heart as drawn by her surgeon.
He's a very good surgeon, but perhaps not the world's best artist :) That being said, to have him walk us through her heart situation with the somewhat questionable visuals was so incredibly helpful to understand exactly what was going on in our little girl.
One of our doctor friends pointed out that Lauren's initials are actually the same as Left Coronary Artery. That is sort of laughable/sort of depressing.
Moving forward we have a huge prayer request. It is so incredibly obvious that prayer allows miracles to happen so we know that if we are diligent in praying, God will answer our prayers. Lauren is now in it for the long haul. As she grows her heart has the potential to restructure and remodel.
The centre part of her heart does not move as the left ventricle squeezes. This stops the blood from getting pushed out of the chamber as it should be. Right now, her numbers still place her in the cardiac failure range. I like to think that this just gives her lots of room for improvement. The muscle in the centre part of her heart is a combination of dead muscle from the lack of blood and "sleeping" muscle that surrounds the dead areas. All of the sleeping cells have the potential to be reawaken and begin to function again. That would increase the ventricle's ability to squeeze.
We pray that every one of the sleeping cells be reawaken.
We pray that her heart is able to eject just as much blood as a normal heart would.
We pray that the size of the left ventricles decreases back to the regular size.
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